Books about Prader-Willi Syndrome


A Recipe For Success: What YOU can Learn About Coping in a Food-Bombarded World From People With Prader-Willi Syndrome, an Extreme Eating Disorder

Shelley Kinash, PhD
University of Calgary

Pages: 97
Perfect bound
Published by: Information Age Publishing
Year of publication: 2007

$33.99 (US) (soft cover web price:
$62.89 hard cover)

978-1-59311-843-3 (soft cover);
978-1-59311-844-0 (hard cover)

Available from: or

The story of Angela Kuffner, a 38 year old woman with PWS, and 23 other Alberta families with a PWS member. “This research is different. It was initiated by a mother and daughter with a disabling condition. They remained partners in the research throughout. They posed the questions. The perspectives are theirs.”

Successfully Supporting People with Prader-Willi Syndrome: A Handbook for Professionals

Jo-Anne Nugent
Nugent Training & Consulting Services

Pages: 88
Cirlox bound
Publisher: Prader-Willi Syndrome Network
Year of publication: 2007
Cost: $25.00
Available from:

“The purpose of this Handbook is to provide practical information to staff and organizations about best practices in supporting people with PWS.” It provides behavioural strategies across environments.

Red Yellow Green System for Weight Management

Karen Balko, RD
Paediatric Dietitian, Clinical Nutrition
North York General Hospital
Toronto, ONT

Pages: 44
Twin loop wire binding
Publisher: Ontario Prader-Willi Syndrome Association
Year of publication: 2005
Cost: $25.00
Available from:

“The Red Yellow Green System described in this book has been used successfully by the Prader-Willi clinic at the North York General Hospital to help over 100 patients control their weight and regain their health.” This book is easily understood and attractively presented. It includes food lists, sample meal plans, healthy recipes, and healthy lifestyle information.

The Way Life Is

Rick Johnson
PWS parent
Winnipeg, MB

Pages: 170
Perfect bound
Publisher: Trafford Publishing, Victoria, BC
Year of publication: 2004
ISBN 141201814-5
Cost: $20.00

Available from: Bookstore at

“The Way Life Is offers a rare and intimate look at the challenges faced by a family with children with special needs, including Prader-Willi syndrome. This book describes, with great honesty, the heart-wrenching experiences of Rick and Pat Johnson and their three children. Their story will be an encouragement to parents of children with special needs. It is a testimony to parental courage and determination in coping with what is often described as “the PWS nightmare.”

Low-fat, Low-sugar Recipes for the Prader-Willi Syndrome Diet (and anyone else who needs to watch calories)

Donna Untersberger
PWS parent
Calgary, AB

Pages: 160
Spiral bound
Publisher: Prader-Willi Syndrome Association (USA)
Year of publication: 2003
Cost: $20.00 (US); $15.00 members
Available from:

“I’ve developed this recipe book for adults and children with PWS, and for those who are trying to reduce fat and sugar in their diet.” This book contains recipes for meals and snacks, nutritional values. substitution list, with PWS tips throughout.

Managing Difficult Behaviours With Persons with Prader-Willi Syndrome

Dr. Bruce A. Lindner, Psychologist
Pryor, Lindner and Associates
Oakville, Ontario

Pages: 88
Twin loop wire binding
Publisher: Ontario Prader Willi Syndrome Association
Year of publication: 2002
Cost: $10.00
Available from:

“This book is intended to provide people who live and work with Prader Willi (PW) children, adolescents, and adults with helpful principles, strategies, and techniques to deal with the challenging behaviours they exhibit.” It addresses common problems from the perspective of behavioural psychology.


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