Makenna: My PWS princess!

makenna bday party

My Makenna

My daughter was diagnosed with a rare genetic disorder called Prader-Willi Syndrome which in a nutshell, (but please feel free to google for more information) will cause a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes for constant supervision necessary.

She is an amazing, bright, strong little girl. She has shown me what life is and how to be a more loving, patient parent. She shines and has a sparkle that lights up a room.

We hope and pray a cure will be found and that she can live an even better life without feeling hungry.

We are “Hungry for a Cure” and won’t stop fighting until we have one!

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s