I started 2013 off with many goals that I hope to accomplish in the next 2-5 years. Some are big and are a reach, but you have to dream big, right?
Nutrition has always been a passion of mine and my original major in college was Kinesiology. It was so impacted and I changed majors to Child Development- which I have had amazing opportunities to work with infants through prechool ages. Makenna was born and we had an amazing 10 days with her before she went into the NICU and we got her diagnosis of PWS.
Like most of you, it’s something I had heard of but was clueless. First learning you have a low tone child with failure to thrive, then it’s like a light bulb goes on and bam, it turns in to her never feel full. EVER!!
Ughh, was my first thought, but then, since I am so passionate about health and nutrition, I pushed aside my feelings of being scared, into “How am I going to be an advocate for Makenna and other’s with PWS. Ding! Ding! Ding! My mission is now to spread awareness and help other families not be scared when calories matter!
Arizona will be hosting its first One Small Step Walk in May for The Foundation for Prader-Willi Research! You can find our fundraising page for Makenna, here. We are so so so ‘Hungry for a Cure.” No donation is too small! Every dollar helps!
My dad and I are in the process of creating water bottles, tumblers and travel mugs with the Prader-Willi logo on them to help create further awareness. When I have final proofs, I will share more information. Right now 50% of the proceeds will be donated back to Prader-Willi Syndrome-USA.
So excited to be apart of an amazing community of people who all want the same goal! Now, let’s get there together!